Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

Orphanet journal of rare diseases

Carla E M Hollak, Marieke Biegstraaten, Matthias R Baumgartner, …, Ronald Wanders, Johannes Zschocke, Rob Hagendijk

• DOI: 10.1186/s13023-016-0383-5
• PMID: 26809514
• PMCID: PMC4727340